We are fundraising for our son Fergus and those like him who have been diagnosed with a rare Eosinophilic Gastrointestinal Disease. Our family relay team of 5 will be cycling 1363Km in 24 hours on two indoor bikes. Read more
Help us to spread awareness among your fellow healthcare professionals by participating in our Think EoE campaign. Register for our pack of resources to help educate others to recognise the symptoms. Read more
EOS Community Chat Wednesday 25th May - an informal zoom event giving an opportunity to meet and chat with others living with Eosinophilic Gastrointestinal Diseases. Read more
We need our community to volunteer to distribute EoE information to their local doctor's surgeries. This will include a patient information poster for the waiting room and a GP information leaflet that will direct them to a dedicated GP online training module, guidelines and patient resources. Read more
My Grandaughter has had the worst three years of her life, she was unwell from the day she was born and this March she was diagnosed with Eosinophilic Colitis. Help us raise funds for a better awareness of this rare disease, improved access to treatments and care for all those affected. Please sponsor my half marathon in the Great North Run Read more
I am fundraising to help my youngest son George and others like him who have been diagnosed with Eosinophilic Colitis a rare gastrointestinal disease. Read more
March's Wellbeing Wednesday sessions will provide an overview of Eosinophilic Oesophagitis (EoE), from allergy and gastroenterology. Suitable for patients, families and healthcare professionals. Read more
Our patient and carer community Wellbeing Wednesday virtual meet-ups will continue in February, and will feature presentations and Q&A sessions from dietitans for both adult and paediatric patients with EoE. Read more
Nov 2020 - We were proud to speak at the EUREOS Eosinophilic Gastrointestinal Diseases Symposium in October, with our Chair Amanda Cordell presenting on the Patient Perspective of living with EoE. Read more
Oct 2020 - RAREfest20 is an interactive event on the 28th November celebrating the stories, science and organisations improving the lives of people with rare diseases. Read more
Oct 2020 - This year's Student Voice Prize information, questions. details on how to apply and the prizes. Read more