Thanks to the support from our donors, healthcare professionals, community members, volunteers, and partners, we have connected a community of healthcare professionals, patients, and their families. Together, we are advocating and actioning changes to improve the future of people with Eosinophilic-associated diseases. 

We are pleased to share our latest impact report with you Read our April 2022 - March 23 Impact Report

Thank YOU for the work you are doing! Without my chat with Amanda I would have carried on thinking that I was just weird, when in fact I've probably had EOE all my life and my food aversions and phobias were just my body self protecting! Fascinating.- Heather

Patient And Healthcare Professionals Resources Available For Free To Download

EOS Network EoE Informational Packs and Medical Guidelines

Patients with Eosinophilic-associated Diseases and families can now download materials like the EoE Symptoms Tracker and build an evidence base to help them and their healthcare professionals select suitable treatment options.

Our EoE Food Bolus Obstruction Action Plan provides vital guidance when food gets stuck, building confidence for those having meals out and facing social anxiety. The EOS community has downloaded these materials 3600 times since 2020.

We have received warm feedback on our regular webinars featuring healthcare specialists. Our educational and awareness videos are available for everyone to watch from our website, reaching over 21K viewers to date.

I discovered EOS Network sometime in 2022, and it was like an "Ahhh" moment. Wow, the information that is available on the website…I really kind of related to it...-Jeff

Since 2022, we have handed 900 "Think EoE" informational packages to healthcare professionals in the UK. Each package comprises sample Patient Leaflets, a Food Bolus Obstruction Action Plan, an EoE Symptom Tracker, a link to Medical Guidelines, an A and E Food Bolus Obstruction poster, a QR code to Patient Resources and a patient information poster.

These resources were taken to GP practices, hospitals, Gastroenterology, and Allergy and Emergency departments to help inform patients, professionals and the public.

Internationally, 1400 healthcare professionals have downloaded EoE Medical Guidelines from our website.

Community Support And Initiatives

Pennie Elfick, a Volunteer, handed over more than 60 informational packs to the General Practitioners (GPs) as a part of our GP Awareness Campaign

We are enhancing our support for our community by providing more personalised newsletters. Insights from our November Community Chat have allowed us to understand our community's current needs better and adjust our strategy for the upcoming year.

Some of our community members who shared their stories, created fundraisers, volunteered, advocated for better care and quality of life, and showed daily optimism and resilience, inspiring others. Thank you!

Together with our community members, we created a project,  Eosinophilic Voices, aimed at sharing their stories and journeys and giving them a voice.
We take pride in supporting our innovative and dedicated fundraisers in their efforts to raise both funds and awareness.

Collaborations With Healthcare Professionals

Amanda Cordel (CEO and founder of EOS Network) with the next generation of rare diseases medics, medicine student Linda Shi (Oxford University)

We collaborate with the BSPGHAN Working Group to enhance patient care. For example, EOS Network recently participated in developing Guidelines for healthcare professionals on diagnosing and managing Eosinophilic Oesophagitis (EoE) in children and adults. 

At the last BSG and BSPGHAN Annual Meeting, we were pleased to hear that most healthcare professionals have heard of us and downloaded the EoE Guidelines from our website.

In addition, they often recommend their patients to head over to the EOS Network website for the information, as this saves lots of time and provides them with vital support.

With our expanding global network of over 500 healthcare professionals, reaching 43 countries, we're committed to improving transitional care from childhood to adulthood, championing research, holistic medical care, support groups, and the mental health well-being of our community. 

Awareness And Advocacy With Healthcare Professionals

Healthcare professionals in our branded "Think EoE!" t-shirts holding Food Bolus Obstruction Action Plan and other educational materials.

From left to right, first row: Dr Hema Kennapan, Dr Tushar Banerjee, Dr Marcus Auth (Medical Advisor) and colleague Vinod Kolimarala, and colleague Prof Anjan Dhar.

Second Row: Dietitian Lucy Jackman and colleague, Dr Joe Chan and Team, Dr Hema Kennapan and team (last two photos).

We are deeply grateful to all our healthcare professionals who are advocating and facilitating better care for people with Eosinophilic-Associated Diseases.

Healthcare Professionals Networking

From left to right: Professor Stephen Attwood, Olena Filatova (Communications Officer), Amanda Cordell (CEO of the EOS Network), Samuel Cordell (Volunteer) at the BSACI Conference, London 2023.

We had the pleasure of participating in the 75th British Society for Allergy & Clinical Immunology (BSACI) Conference in London, where we met numerous professionals and patients who share our passion for improving the care of Eosinophilic-Associated Diseases.

With around 80% of our community reporting one or more atopic diseases, many of them may seek assistance from allergologists. Hence, it is crucial to raise awareness among them for early referrals to gastroenterologists and timely diagnosis of EADs.

One of the highlights was meeting Professor Attwood, a pioneer in diagnosing and treating Eosinophilic Oesophagitis (EoE), who gave a keynote speech on the latest research and treatment.
We enjoyed meeting with young professionals who were keen to learn more about EADs.

30 healthcare professionals joined our network, and many more took materials to carry and share with their colleagues and patients.

News Highlights: Research And Events In Eosinophilic Associated Diseases Fields

One of the regular online Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR) Meetings discussing the latest research updates with healthcare professionals and representatives from Eosinophilic Disease charities.

As a part of CEGIR, EOS Network participates in regular meetings to discuss the latest research and represent patients' voices in their initiatives and research. We regularly update our website with the latest industry news to translate those findings for the patient community.

Thank You To Our Amazing Supporters and Donors 

Ted&Nancy fundraiser Team that collected more than £2580 for EOS Network

Our achievements wouldn't be possible without the incredible support of all our fundraisers, volunteers, donors and sponsoring partners. Every donation, time or money, helps us continue this essential work to achieve our mission of a future where every person with an Eosinophilic-Associated Disease receives a prompt, accurate diagnosis, the right treatment for them, and support to live with their condition. 

Thank you to every supporter 

Get Involved In Improving Lives Of Eosinophilic Diseases Patients And Families

• Make a donation
• Set up a fundraiser
• Volunteer your time and skills

Read our April 2022 - March 23 Impact Report

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Last updated 07/12/23 ©EOS Network 2020. All rights reserved.