About Us Our Mission What We Do: Improving Lives for People with Eosinophilic Diseases EOS Network is a registered charity led by lived experience, guided by a voluntary global medical expert advisory board and governed by skilled trustees. We provide information and support for patients, carers, and families and a platform for clinicians and researchers to connect and share the latest research and best evidence-based practice. Our Story EOS Network Team at the London Allergy Show, 2025 Our journey began in 2004, when our founder, Amanda’s baby, was diagnosed with complex Eosinophilic-Associated Diseases (EADs). This inspired her to start an online parent support group to find other families and feel less isolated. At that time, much of the understanding was hypotheses, and there was an urgent need for global research and knowledge exchange for eosinophilic diseases. For 20 years, Amanda volunteered tirelessly, attending educational events, building networks, advocating for change, and fundraising, all while caring for her two seriously ill children and supporting other families in need. Today, EOS Network is a registered charity reaching 160+ countries. We support, educate, and connect thousands of families and healthcare professionals within our Members Network. Our website informs 5000 new visitors each month. Join us as a parent or carer of someone with EADs, or as an adult living with EADs. Carla: "You saved my life when I felt I couldn’t go on. You picked up the phone, made me feel understood and gave me hope for my future". Read Carla's Story Watch the 15-minute presentation by Amanda Cordell. Discover our story, explore our work, and see the impact we have on patients’ lives. What Is Eosinophilic Disease? Eosinophilic-Associated Diseases (EADs) are type 2 inflammatory conditions often triggered by food and the environment. They affect one in 700 people. These diseases are commonly found in those with a history of allergic conditions. They are lifelong; there is currently no cure. EADs, although often invisible, can cause severe pain and discomfort, which affects both physical and mental health, impacting the whole family. Jess: "Since Myla was 10 months old, she’s battled insufferable vomiting, extreme throat, tummy pain and other symptoms. She’s no stranger to multiple hospital visits and continues to show how brave she is to fight for remission. But we wouldn’t have the knowledge or the confidence to advocate for Myla without the help from the EOS Network". Click here to support more families Our Mission Is to ensure that every person with an Eosinophilic-Associated Disease receives a prompt, accurate diagnosis, cohesive medical care, and support to live with their condition. Our Values We aspire to be well-informed collaborative agents of change, dedicated to improving our Community’s future. We are inclusive, compassionate and devoted to ensuring that everyone feels respected, empowered, and supported in health as a whole person. Our Behaviours We are driven, open with everyone, and focused on getting results. What We Do EOS Network Trustees, 2025 Educate: Increase general public awareness to reduce diagnosis times and advocate for holistic patient care. Empower: Provide information, community support and tools for people living with eosinophilic-associated diseases, reducing feelings of isolation and empowering confidence in advocating for care. Facilitate: Provide a global professional platform for clinicians and researchers to connect and share the latest research and expertise. Advocate: Work with medical bodies, researchers, manufacturers, and funders to ensure the patient’s voice is heard for decisions about research priorities and treatment guidelines. Dr Rothenberg, Cincinnati Center for Eosinophilic Diseases, and CEGIR : "I wanted to give you a round of applause for what you are doing with your organisation. Thank you very much to all your supporters and members who advance the field and call attention of the right people to this important disease in an effort to improve those suffering from it." Share your research with EOS Network EOS Network’s patient/carer community focus groups, healthcare professionals working groups and medical advisory board play an integral role in all the resources created and strategies developed. EOS Network listens to our patient and carer community, professionals’ network, our partners and the public, through social media, our community hub, virtual meetings, monitoring participation on chat groups and our professionals’ forum. We advocate for our communities in all aspects of our charity’s work. Fergus: "Through EOS Network my Dr connected with an international expert which enabled him to diagnose and to treat me successfully and improve my quality of life." Become a member as a healthcare professional Why We Do It EOS Network patient resources Lack of Awareness of Early Signs and Symptoms: EADs are often under-recognised and misunderstood. Delayed Diagnosis: The average time to diagnosis in our community is three years for children and eight years for adults. Misdiagnosis and Long-Term Damage: Misdiagnosis can delay treatment, cause unnecessary procedures, and lead to long-term tissue damage. Financial and Emotional Burden: Delays and challenges put financial and mental strain on families and healthcare providers. Limited Treatment Options: A lack of access to personalised treatments and cohesive care negatively impacts health and quality of life. Stella: "For a very long time, I thought it was normal to be sick and unable to swallow food. I was a fussy eater as a child and only at 50 I was diagnosed. My treatment journey continues but the support of EOS Network keeps me going". Read Stella's Story Our Vision and Hope for the Future Every donation helps us to achieve a world where lives are no longer inhibited and controlled by Eosinophilic-Associated Diseases. Learn more about our impact on people's lives Make a Donation Last updated 17/11/25 ©EOS Network 2025 All rights reserved Manage Cookie Preferences