This survey is created for adult patients, parents and caregivers. If you are a healthcare professional, please use this survey.

What is Eosinophilic Oesophagitis (EoE)?

Eosinophilic Oesophagitis (EoE) is the most common of the eosinophilic gut disorders, occurring in approximately 1 in 1,500 people.

It is sometimes described as Oesophageal Asthma and is spelt ‘Eosinophilic Esophagitis’ in the US and Canada.

EoE is a chronic disease affecting the oesophagus, the tube connecting the mouth and stomach. Too many eosinophils, a type of white blood cell, in the oesophagus causes inflammation, making swallowing difficult.

Transitioning to adulthood adds another layer of complexity for EoE patients.

What is Transition Care?

Transition is the process of preparing, planning and moving from children’s to adult services. Transition is a gradual process that gives patients and the teams involved in the patient’s care time to get the patients ready to move to adult services and discuss what their healthcare needs as an adult are likely to be.

This includes deciding which services are best for the patient and where the patient will receive that care.  

EOS Network's Role in Improving Transition Care

We are helping to assess the current experience of EoE patients and their carers when transitioning from children's to adult healthcare services.

As a part of the British Society of Paediatric Gastroenterology, Hepatology and Nutrition (BSPGHAN) working group and the voice of our patient community, this information will enable us to advocate for improvements to the services provided.

Why is it Important To Participate?

Participating in this survey is vital for people facing challenges living with EoE, including patients, parents, and caregivers.

By giving us your experiences and viewpoints, you can make a real difference in shaping better healthcare services and support networks.

Your feedback will influence choices about local healthcare options, what types of professionals should be on healthcare teams, and how to develop more efficient transition plans for care. Ultimately, your involvement can elevate the quality of medical care for everyone affected by EoE.

The survey will collect results until 01.01.2024, and then it will be closed for submissions.

Disclaimer: Please note that this survey aims to gather broad information about arrangements for current EoE transition services across the UK. We will aim to maintain anonymity; no local data will be published without consent.