EoE/EGID and COVID-19 – an urgent World-Wide data collection

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Announcement 28.3.2020 on behalf of 

• Noam Zevit MD (Pediatric Gastroenterologist, Schneider Children’s Medical Center of Israel)
• Evan Dellon MD, MPH (Gastroenterologist, University of North Carolina at Chapel Hill)
• Mirna Chehade MD, MPH (Pediatric Gastroenterologist , Icahn School of Medicine at Mount Sinai, New York)

The recent surge in cases of COVID-19 throughout the world and its severe impact on global healthcare have highlighted the need for the rapid accumulation of data pertaining to subpopulations infected with the virus in order to allow for the development of disease/treatment specific clinical recommendations.

A platform has been developed for health care providers only to collect information on patients previously diagnosed with Eosinophilic Esophagitis (EoE) and Eosinophilic Gastrointestinal Diseases (EGID) who are under high suspicion or confirmed with a diagnosis of COVID-19.

We encourage practitioners world-wide to report ALL confirmed cases (including asymptomatic cases identified by through public health screening) and severe cases for whom COVID-19 has not been confirmed because of the lack of available testing (these will be listed as unconfirmed in the questionnaire).

The case report form (link below) should be completed by health care providers after the patient has had COVID-19 for a long enough duration to experience partial or complete recovery, hospitalization, or death.

Key points

❖ This is an international effort – EoE/EGID are rare conditions and only with international cooperation will we be able to gather enough information.

❖ This data collection contains only de-identified data in accordance with HIPAA Safe Harbor De-Identification standards.

❖ The study has been approved by the Schneider Children’s Medical Center of Israel IRB.

This data collection has been endorsed internationally by:

  

EGID working group - European Society for Gastroenterology Nutrition and Liver Disease

Consortium of Eosinophilic Gastrointestinal Disease Researchers

European Consortium for Eosinophilic Diseases of the GI tract

North American Society for Pediatric Gastroenterology Nutrition and Liver Diseases

United European Gastroenterology

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Health care providers ONLY - Click here to report a case and view current results

Patients and Carers this registry form must be completed by your health care provider

If you or someone you care for has had EoE/EGID and COVID-19 please inform your healthcare provider and request they complete the form to help with the important data collection. A copy of the registry information is available to Print or Email Here

Watch Dr Evan Dellon explain what they hope to learn from this registry and how you can help.

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Last updated 27/10/20 ©EOS Network 2020 All rights reserved