COVID-19 - EoE / EGID research

EoE/EGID and COVID-19 – an urgent World-Wide data collection

---

Announcement 28.3.2020 on behalf of 

• Noam Zevit MD (Pediatric Gastroenterologist, Schneider Children’s Medical Center of Israel)
• Evan Dellon MD, MPH (Gastroenterologist, University of North Carolina at Chapel Hill)
• Mirna Chehade MD, MPH (Pediatric Gastroenterologist , Icahn School of Medicine at Mount Sinai, New York)

The recent surge in cases of COVID-19 throughout the world and its severe impact on global healthcare have highlighted the need for the rapid accumulation of data pertaining to subpopulations infected with the virus in order to allow for the development of disease/treatment specific clinical recommendations.

A platform has been developed for health care providers only to collect information on patients previously diagnosed with Eosinophilic Esophagitis (EoE) and Eosinophilic Gastrointestinal Diseases (EGID) who are under high suspicion or confirmed with a diagnosis of COVID-19.

We encourage practitioners world-wide to report ALL confirmed cases (including asymptomatic cases identified by through public health screening) and severe cases for whom COVID-19 has not been confirmed because of the lack of available testing (these will be listed as unconfirmed in the questionnaire).

The case report form (link below) should be completed by health care providers after the patient has had COVID-19 for a long enough duration to experience partial or complete recovery, hospitalization, or death.

Key points

❖ This is an international effort – EoE/EGID are rare conditions and only with international cooperation will we be able to gather enough information.

❖ This data collection contains only de-identified data in accordance with HIPAA Safe Harbor De-Identification standards.

❖ The study has been approved by the Schneider Children’s Medical Center of Israel IRB.

This data collection has been endorsed internationally by:

 

EGID working group - European Society for Gastroenterology Nutrition and Liver Disease

Consortium of Eosinophilic Gastrointestinal Disease Researchers

European Consortium for Eosinophilic Diseases of the GI tract

 

North American Society for Pediatric Gastroenterology Nutrition and Liver Diseases

United European Gastroenterology

---

Health care providers ONLY  Click here to report a case and view current data results

To keep updated on the latest global news and collaboration, join the EOS Network Professionals Global Register Here  

---

Patient's and Carer's  

This registry form must be completed by your health care provider.

Please inform your healthcare provider if you or someone you care for has had EoE/EGID and COVID-19 and request they complete the form to help with the important data collection.

You may wish to supply them with a copy of the registry information letter which is available to print or email Click here

If you have any questions Click here to contact us @ EOS Network 

To receive the latest news and research join the EoE EGID patient/carer EOS Network community Register Here

If you would like to support research into Eosinophilic diseases donate here

Last updated 13/10/20 ©EOS Network 2020 All rights reserved