Skip over main navigation
  • Log in
  • Basket: (0 items)
EOS Network

 

  • Facebook
  • Linkedin
  • Twitter
  • Instagram
  • Youtube
Join usDonate
  • Twitter
Menu
  • About EOS Network
    • What we do
    • Our Team
      • Trustees
      • Medical Advisors
    • Our Associates
    • Our Fundraising Promise
    • Ethical Policy
    • Contact us
  • About Eosinophilic Diseases
    • What is an Eosinophil?
    • What is an Eosinophilic Disease?
    • Types of Eosinophilic Diseases
    • EoE Eosinophilic Oesophagitis Upper Gut
    • EG - EGE - EC Eosinophilic Diseases Lower Gut
  • Information
    • Resources
      • Food Obstruction Patient Action Plan
      • Patient Leaflets
      • Useful Videos
        • Adult Diets in EoE
        • Children's Diets in EoE
        • Relaxation course
      • Recipes and Cooking Tips
      • Global support groups
    • Find a Doctor
    • Patient Stories
  • News
    • Latest News
    • Research News
    • EoE and Covid-19 UK FAQ's
    • Events
      • Community Events
      • Events for HCPs
  • Support Us
    • Give to an appeal
    • Three Free Ways To Help Today
    • Fundraise for us
      • How to fundraise
      • Set up your own fundraising page
      • Challenge events
      • Our fundraising promise
      • Fundraising tools
    • Donate
    • Sponsor a fundraiser
    • Volunteer
  • Join today
    • Why Register?
    • Patient Registration Form
    • Caregiver / Parent Registration Form
    • Professional Registration Form
  • Professionals
    • Join EOS Professional Network
    • Food Obstruction HCP Global Survey
    • COVID-19 - EoE / EGID research
    • COVID-19 Guidance Links
    • Clinical Education
    • Datasets For Research
    • Medical Guidelines
    • Published Studies
    • Dates for your diary
    • Professionals Global Directory Map
  • Admin
    • Log in
  • Basket: (0 items)
  1. Professionals
  2. COVID-19 - EoE / EGID research

COVID-19 - EoE / EGID research

EoE/EGID and COVID-19 – an urgent World-Wide data collection


Announcement 28.3.2020 on behalf of 

  • Noam Zevit MD (Pediatric Gastroenterologist, Schneider Children’s Medical Center of Israel)
  • Evan Dellon MD, MPH (Gastroenterologist, University of North Carolina at Chapel Hill)
  • Mirna Chehade MD, MPH (Pediatric Gastroenterologist , Icahn School of Medicine at Mount Sinai, New York)

The recent surge in cases of COVID-19 throughout the world and its severe impact on global healthcare have highlighted the need for the rapid accumulation of data pertaining to subpopulations infected with the virus in order to allow for the development of disease/treatment specific clinical recommendations.

A platform has been developed for health care providers only to collect information on patients previously diagnosed with Eosinophilic Esophagitis (EoE) and Eosinophilic Gastrointestinal Diseases (EGID) who are under high suspicion or confirmed with a diagnosis of COVID-19.

We encourage practitioners world-wide to report ALL confirmed cases (including asymptomatic cases identified by through public health screening) and severe cases for whom COVID-19 has not been confirmed because of the lack of available testing (these will be listed as unconfirmed in the questionnaire).

The case report form (link below) should be completed by health care providers after the patient has had COVID-19 for a long enough duration to experience partial or complete recovery, hospitalization, or death.

Key points

❖ This is an international effort – EoE/EGID are rare conditions and only with international cooperation will we be able to gather enough information.

❖ This data collection contains only de-identified data in accordance with HIPAA Safe Harbor De-Identification standards.

❖ The study has been approved by the Schneider Children’s Medical Center of Israel IRB.

This data collection has been endorsed internationally by:

  

EGID working group - European Society for Gastroenterology Nutrition and Liver Disease

Consortium of Eosinophilic Gastrointestinal Disease Researchers

European Consortium for Eosinophilic Diseases of the GI tract

North American Society for Pediatric Gastroenterology Nutrition and Liver Diseases

United European Gastroenterology


Health care providers ONLY - Click here to report a case and view current results

Patients and Carers this registry form must be completed by your health care provider

If you or someone you care for has had EoE/EGID and COVID-19 please inform your healthcare provider and request they complete the form to help with the important data collection. A copy of the registry information is available to Print or Email Here

Watch Dr Evan Dellon explain what they hope to learn from this registry and how you can help.

Help support research into Eosinophilic diseases donate today

Please select a donation amount (required)
Set up a regular payment Donate

Last updated 27/10/20 ©EOS Network 2020 All rights reserved

Published: 8th April, 2020

Updated: 4th December, 2020

Author: Amanda Cordell

Share this page
  • Email
  • Facebook
  • Twitter

Latest

  • EUREOS & TIGERS 3rd Joint Webinar

    EUREOS & TIGERS 3rd Joint Webinar

    Apr 2021 - The next joint webinar from EUREOS and TIGERS will take place on June 16th. Here's the speakers, registration and agenda for the virtual event

  • Children's Diets in EoE

    Children's Diets in EoE

    Watch recorded presentations from our Wellbeing Wednesday sessions on paediatric diets in EoE. Topics include how and why diets are used, types of diet and daily management tips and advice.

  • Introduction to Calm

    Introduction to Calm

    Watch four 30 minute interactive sessions on wellbeing, relaxation and stress management with a focus on living with a rare condition.

  • Three Free Ways To Help Today

    Three Free Ways To Help Today

    Supporting EOS Network has never been easier. Using these three online services you can help raise donations for our charity at no cost to you! Learn how Thrift+, Give As You Live and AmazonSmile work and how to get started.

Related

  • Volunteer fundraising researcher/ bid writer

    Volunteer fundraising researcher/ bid writer

    We are looking for a fundraising researcher/ bid writer to help us raise funds to support and improve their medical treatment for children and adults affected by eosinophilic diseases.

Most read

  • EoE = Eosinophilic Oesophagitis

    EoE = Eosinophilic Oesophagitis

    EoE Eosinophilic Oesophagitis (EoE) is a more common type of eosinophilic disease. Symptoms can vary but are usually related to the oesophagus.

  • Allakos Announces Multiple Presentations

    Allakos Announces Multiple Presentations

    Oct 2019 - Allakos Announces Multiple Presentations from Its Eosinophilic Gastrointestinal Diseases Program at the American College of Gastroenterology (ACG) 2019 Annual Scientific Meeting.

  • What is an eosinophil?

    What is an eosinophil?

    The eosinophil has many varied roles some of which are yet to be discovered. Current research shows that they can be both helpful and harmful. In a healthy individual typically 1 to 5% of white blood cells are eosinophils which play an important role in your immune system.

  • Recipes and Cooking Tips

    Recipes and Cooking Tips

    Living with Eosinophilic diseases often means managing a restricted diet. Click to find information and yummy recipes adapted to be free of the big 6 Egg - Wheat - Dairy - Soy -Fish - Nut

  • Accessibility

  • Example - Support us

    Push already-interested visitors over the line with stories, stats and ideas. Make next steps clear

  • Example - How we're funded

    State your case for the support you need, while showing supporters can trust you (be transparent)

  • What are Eosinophilic Diseases?

    What are Eosinophilic Diseases?

    When abnormal levels of eosinophils are found in your digestive system (oesophagus, stomach or intestine/bowel), tissues, blood or other organs without a known cause/diagnosis, further consideration should be given to eosinophilic - associated diseases.

  • Example - Mission, vision, values

    What you're all about -- but write to inform and inspire site visitors, not for yourselves

  • Example - Our history

    Tell the relevant, inspiring parts of how you started, where you are today and any major milestones

Tag cloud

community conferences covid eg ege eoe research treatment

Latest tweet


Contact us

EOS Network 
PO Box 12844
Colchester 
Essex
CO7 5AQ
United Kingdom 

Tel: +44 (0)333 772 1309
Contact us via web

Links

  • Sitemap
  • Accessibility
  • Terms & Conditions
  • Privacy Policy

Follow us

  • Facebook
  • Linkedin
  • Twitter
  • Instagram
  • Youtube

Registered as Charity number 1143267