Team Rice

We are fundraising for our son Fergus and those like him who have been diagnosed with a rare Eosinophilic Gastrointestinal Disease. Our family relay team of 5 will be cycling 1363Km in 24 hours on two indoor bikes. Read more
Target £1,000 Raised so far £1,555 £1,858 incl. Gift Aid
Please select a donation amount (required)
£10 Will help keep our phone lines open so we can be there when someone needs us

£25 Will help support suffers, through online community meetings

£50 Will help collaborative research to reach all those affected, bringing hope for a better future

£100 Will help kick start new projects such as helping young people transition from childhood to adulthood with living with these chronic illnesses.

Other

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Think EoE! Healthcare Professionals Campaign

Help us to spread awareness among your fellow healthcare professionals by participating in our Think EoE campaign. Register for our pack of resources to help educate others to recognise the symptoms. Read more
May Community Chat

EOS Community Chat Wednesday 25th May - an informal zoom event giving an opportunity to meet and chat with others living with Eosinophilic Gastrointestinal Diseases. Read more

Events

Think EoE! GP Awareness Campaign

We need our community to volunteer to distribute EoE information to their local doctor's surgeries. This will include a patient information poster for the waiting room and a GP information leaflet that will direct them to a dedicated GP online training module, guidelines and patient resources. Read more

Team Rice

We are fundraising for our son Fergus and those like him who have been diagnosed with a rare Eosinophilic Gastrointestinal Disease. Our family relay team of 5 will be cycling 1363Km in 24 hours on two indoor bikes. Read more

Think EoE! Healthcare Professionals Campaign

Help us to spread awareness among your fellow healthcare professionals by participating in our Think EoE campaign. Register for our pack of resources to help educate others to recognise the symptoms. Read more

May Community Chat

EOS Community Chat Wednesday 25th May - an informal zoom event giving an opportunity to meet and chat with others living with Eosinophilic Gastrointestinal Diseases. Read more

Angela's GNR 2021

My Grandaughter has had the worst three years of her life, she was unwell from the day she was born and this March she was diagnosed with Eosinophilic Colitis. Help us raise funds for a better awareness of this rare disease, improved access to treatments and care for all those affected. Please sponsor my half marathon in the Great North Run Read more

Mark's - UK IRON Man Distance Triathlon

I am fundraising to help my youngest son George and others like him who have been diagnosed with Eosinophilic Colitis a rare gastrointestinal disease. Read more

Wellbeing Wednesdays: EoE - what you need to know

March's Wellbeing Wednesday sessions will provide an overview of Eosinophilic Oesophagitis (EoE), from allergy and gastroenterology. Suitable for patients, families and healthcare professionals. Read more

Wellbeing Wednesdays: EoE and Diets

Our patient and carer community Wellbeing Wednesday virtual meet-ups will continue in February, and will feature presentations and Q&A sessions from dietitans for both adult and paediatric patients with EoE. Read more

EUREOS EGID Symposium 2020

Nov 2020 - We were proud to speak at the EUREOS Eosinophilic Gastrointestinal Diseases Symposium in October, with our Chair Amanda Cordell presenting on the Patient Perspective of living with EoE. Read more

RAREfest20

Oct 2020 - RAREfest20 is an interactive event on the 28th November celebrating the stories, science and organisations improving the lives of people with rare diseases. Read more

Student Voice Prize 2020

Oct 2020 - This year's Student Voice Prize information, questions. details on how to apply and the prizes. Read more

Latest

EoE HCP Educational UK Roadshow

An educational EoE Roadshow is coming to cities across the UK, offering an excellent opportunity for HCPs to learn more about the fast-changing landscape of eosinophilic oesophagitis.
New Clinical Severity Index for Management of EoE

The Index, produced by CEGIR researchers, is another step towards global consensus, and is designed to help HCPs monitor EoE severity to make informed decisions about treatment and management.
Positive clinical results for treating EoE in under 12s

July 2022 - A trial investigating dupilimab to treat children under 12 with EoE has achieved positive results. This follows the FDA's approval of dupilimab to treat EoE in adults and children 12 and over earlier this year.
New EoE BSG BSPGHAN Joint Guideline

New Eosinophilic Oesophagitis EoE Paediatric to Adult Comprehensive Medical Diagnosis and Care Guidelines

EoE - Eosinophilic Oesophagitis

EoE Eosinophilic Oesophagitis (EoE) is a chronic condition where an individual has too many of a white blood cell called an eosinophil in the oesophagus, which causes inflammation and difficulties swallowing.
What are Eosinophilic Diseases?

When abnormal levels of eosinophils are found in your digestive system (oesophagus, stomach or intestine/bowel), tissues, blood or other organs without a known cause/diagnosis, further consideration should be given to eosinophilic - associated diseases.
EoE Symptoms and Causes

The symptoms and known causes of eosinophilic oesophagitis (EoE) in children and adults. Links to videos from gastroenterologists and a patient Action Plan for food blockages.
EoE Treatment

An overview of the different types of treatment for eosinophilic oesophagitis (EoE). Includes dietary, allergy, dilatation and drug therapies.
Types of Eosinophilic Diseases

EGID’S Eosinophilic Gastrointestinal Disorders: EoE Eosinophilic Oesophagitis Esophagitis: Oesophagus EoG Eosinophilic Gastritis: stomach EoN Eosinophilic Enteritis: small intestine EoC Eosinophilic Colitis: large intestine HES Hypereosinophilic Syndrome: blood and any organ Churg-Strauss Syndrome - Eosinophilic Granulomatosis with Polyangiitis: lungs, sinuses, heart, various organ systems
What is an eosinophil?

The eosinophil has many varied roles some of which are yet to be discovered. Current research shows that they can be both helpful and harmful. In a healthy individual typically 1 to 5% of white blood cells are eosinophils which play an important role in your immune system.
EoE and Covid-19 UK FAQ's

Frequently Asked Questions on Covid-19 and EoE Eosinophilic Oesophagitis, answered by the British Society of Paediatric Gastroenterology, Hepatology and Nutrition BSPGHAN Working Group Click Here
EoE Diagnosis

How eosinophilic oesophagitis (EoE) is diagnosed, current medical guidelines and more resources for patients and healthcare professionals.
Food Obstruction Patient Action Plan

EoE Food Obstruction Action Plan for Patients and Carers. A free printable resource for those diagnosed with Eosinophilic Oesophagitis.
EoG - EoN - EoC Eosinophilic Diseases Lower Gut

What Are Lower Gut Eosinophilic Gastrointestinal Diseases the lower EGID's: Eosinophilic Gastritis EoG - Eosinophilic Enteritis EoN - Eosinophilic Colitis EoC?

Food Obstruction Patient Action Plan

EoE Food Obstruction Action Plan for Patients and Carers. A free printable resource for those diagnosed with Eosinophilic Oesophagitis. Read more

EAW 22 - Save the Date!

Save the date in your diaries - Eosinophil Awareness Week (EAW) will take place 16th - 22nd May this year! It's an opportunity to promote awareness of EGIDs and show support for those living with eosinophilic diseases. Read more