"My EoE" Survey: Share Your Experience Eosinophilic Esophagitis (EoE) is a chronic immune-mediated condition that affects the esophagus. It leads to inflammation, resulting in symptoms such as difficulty swallowing, chest pain, and food getting stuck in the throat. EoE can significantly impact the quality of life and impose financial burdens due to challenges in diagnosis, additional costs associated with maintaining special diets, and medication expenses when these are not provided for free to patients. This study, conducted by the "My-EoE" team, investigates patient experiences with EoE to assess how much patients with Eosinophilic Esophagitis and their families know about the disease, how they feel involved in the doctor's decisions, and how Eosinophilic Esophagitis affects their daily lives. As a result, this project aims to develop an internet-based decision-assisting tool to help patients and practitioners make the best clinical decisions based on clinical and test results and patient-identified preferences. The survey is anonymous and is available in English, German, Hebrew, and Spanish. Start the Survey Noam Zevit, Schneider Children's Medical Center of Israel - Institute of Gastroenterology, Nutrition, and Liver Diseases - The "My-EoE" study team. 'Eosinophilic esophagitis has now been recognized for three decades. Leaps have been made in our understanding of the disease, yet there is still much more that still do not understand. Most clinical studies have looked at patient experiences with EoE through the eyes of their physicians. We would like to invite you to participate in "My-EoE", an anonymous survey of EoE patients, which will attempt to capture how you, the patients, experience and understand your disease. (For pediatric patients we will explore the childs assertions mediated through the parent who completes the form with input from the patient). We hope that your answers will provide us, the clinicians and scientists, with a better understanding of how you experience your condition, and point out areas where we may better focus our future efforts in order to improve your treatment and care. We have had a nice response from patients in Italy and Israel, and are currently collecting responses from Spain and expanding to the UK as well in order to assess if there are geographical differences in the response rates. We will also compare answers from our regions to those in North America. The questionnaire functions better on a computer or tablet rather than smartphone. Thank you for your continued support. Your shared involvement in this and other research, makes you active members in the endeavor to find better solutions for eosinophilic esophagitis.' Manage Cookie Preferences