EOS Network

Pollen Season and EoE: How It Affects Diet Treatment

Pollen season can lower the response rate to the six-food elimination diet (SFED) in patients with Eosinophilic Oesophagitis (EoE), study shows. Read more

How does the EOS Network get involved in clinical research as a patient organisation?

Do you need to stop your medication to participate in a trial?

Are there any avenues to conduct research ourselves?

How do I take part in a trial?

How do researchers recruit people for clinical trials?

Do different trial stages involve different cohorts of patients?

If my consultant and the research team have different opinions, whose opinion takes precedence?

What is the average time it takes from the conception of an idea to the delivery of the treatment to people?

If a product has been repurposed from another condition, does it alter the clinical trials' timeline?

Can participants follow specific diets without needing to change or stop them, and do they need to maintain a stable condition throughout the study?

What does it mean when a study is stopped because it didn't meet its primary endpoint?

What other factors do you consider besides money when determining the trial duration?

What happens to the participants at the end of the trial? Do they stop taking the drug, or can they continue if it has proven effective?

Is licensing the trial's results similar in the UK and the US?

What happens to the drug at the end of the study, and what are the next steps for getting it to people?

Is this process only used for drugs, or is it used for other aspects of medical research?

Where do children fit into the process of clinical trials?

High Prevalence of GI Disorders in Joint Hypermobility Patients. Study Findings

The study shows a high prevalence of GI disorders in hEDS/JHS patients, including constipation, dysphagia, and Eosinophilic Diseases. Read more

Clinical Aspects of Eosinophilia: Free Webinar From IES

Join the IES Outreach & Diversity Committee's free eosinophilic disease webinar featuring top clinicians and researchers. Read more

Discovering Mast Cells' Role in Eosinophilic Oesophagitis with Machine Learning

Explore how a recent study used machine learning to localise and characterise mast cells in the pathology of EoE. Read more

Eosinophilic Oesophagitis Leaflet

Download our Eosinophilic Oesophagitis (EoE) leaflet for essential information on symptoms and treatment options. Get valuable insights to understand and manage EoE better. Read more

Guidelines for Childhood Eosinophilic Gastrointestinal Disorders Beyond EoE by ESPGHAN/NASPGHAN

Explore the latest guidelines on Non-Eosinophilic Oesophagitis (Non-EoE) EGIDs in childhood, including challenges in development and implications for clinical and research practice. Read more

Latest

Pollen Season and EoE: How It Affects Diet Treatment

Pollen season can lower the response rate to the six-food elimination diet (SFED) in patients with Eosinophilic Oesophagitis (EoE), study shows.
How does the EOS Network get involved in clinical research as a patient organisation?
Do you need to stop your medication to participate in a trial?
Are there any avenues to conduct research ourselves?

What Is An Eosinophilic-Associated Disease (EAD)?

When abnormal levels of eosinophils are found in your body (oesophagus, stomach or intestine/bowel), tissues, blood or other organs without a known cause/diagnosis, further consideration should be given to eosinophilic - associated diseases (EADs).
EoE - Eosinophilic Oesophagitis

Learn about Eosinophilic Oesophagitis (EoE), a chronic disease affecting the oesophagus. Discover its symptoms, causes, diagnosis methods, and treatment options at EOS Network.
EoE Symptoms and Causes

The symptoms and known causes of eosinophilic oesophagitis (EoE) in children and adults. Links to videos from gastroenterologists and a patient Action Plan for food blockages.
EoE Treatment

An overview of the different types of treatment for Eosinophilic esophagitis (EoE). Includes dietary, allergy, dilatation and drug therapies.
Types of Eosinophilic Diseases

EGID’S Eosinophilic Gastrointestinal Diseases: EoE Eosinophilic Oesophagitis Esophagitis: Oesophagus EoG Eosinophilic Gastritis: stomach EoN Eosinophilic Enteritis: small intestine EoC Eosinophilic Colitis: large intestine HES Hypereosinophilic Syndrome: blood and any organ Churg-Strauss Syndrome - Eosinophilic Granulomatosis with Polyangiitis: lungs, sinuses, heart, various organ systems
EoE Diagnosis

How eosinophilic oesophagitis (EoE) is diagnosed, current medical guidelines and more resources for patients and healthcare professionals.
What is an eosinophil?

Learn about eosinophils, their function in the immune system, and their impact on eosinophilic diseases. Discover how EOS Network supports research and provides resources for patients.
Food Obstruction Patient Action Plan

EoE Food Obstruction Action Plan for Patients and Carers. A free printable resource for those diagnosed with Eosinophilic Oesophagitis.
Recipes and Cooking Tips

Living with Eosinophilic diseases often means managing a restricted diet. Click to find information and yummy recipes adapted to be free of the big 6 Egg - Wheat - Dairy - Soy -Fish - Nut
EoE and Covid-19 UK FAQ's

Frequently Asked Questions on Covid-19 and EoE Eosinophilic Oesophagitis, answered by the British Society of Paediatric Gastroenterology, Hepatology and Nutrition BSPGHAN Working Group Click Here

Food Obstruction Patient Action Plan

EoE Food Obstruction Action Plan for Patients and Carers. A free printable resource for those diagnosed with Eosinophilic Oesophagitis. Read more

Save the date in your diaries - Eosinophil Awareness Week (EAW) will take place 16th - 22nd May this year! It's an opportunity to promote awareness of EGIDs and show support for those living with eosinophilic diseases. Read more