How do I take part in a trial?

Living with an Eosinophilic-Associated disease provides a valuable experience that can positively impact others.

There are numerous ways to contribute to research beyond participating in trials, such as:

• Drug trials
• Diagnostic trials
• Giving a blood sample
• Completing a questionnaire
• Taking part in a focus group

Patients often inspire the idea for a trial. Don't hesitate to speak to your professional if you have any concerns or questions. If many people have the same situation, it might inspire the research.

You can also help to shape the future research by:

• Working with research funders to help prioritise patients' needs
• Joining project steering groups
• Participating in focus groups
• Completing surveys to inform the study

At this stage, there is no actual study, but rather the research before starting the trial. Your lived experience is vital for researchers to understand what is important for patients.

You can support research by organising fundraising events. These events can help us fund our work and raise awareness about EADs. There are opportunities to join the ethics committee, as well as opportunities within ethics committees, even outside of your specific disease area. If this interests you, laypeople (individuals outside healthcare professions or healthcare services researchers) are encouraged to get involved.

When it comes to NICE, it is essential to consider the cost versus benefits to the NHS and to explain the patient's experience. As more treatments become available for specific diseases, there will be more opportunities to participate.

EOS Network receives updates about opportunities like this. Please sign up for our newsletter to stay connected and discover current trials.

The answer is provided by Amanda Cordell,

SEO and Founder of EOS Network