Wellbeing Wednesdays: EoE - what you need to know

*Update* - watch the full series here.

Join us throughout March, as we provide a comprehensive overview of Eosinophilic Oesophagitis and answer many of the common questions asked by EoE patients and their families.

Across our five-part webinar series, we will cover all aspects of the disease - from both a gastroenterology and allergy perspective.

These sessions are suitable for patients, their families and healthcare professionals looking to gain a general understanding of the disease.

Reserve your place

When are they taking place?

Wellbeing Wednesdays: EoE - what you need to know will begin on 3rd of March 2021 and continue each Wednesday in the month. There will be 5 weeks in total.

All of the sessions will take place on Zoom and will begin at 7pm UK time*, lasting for 90 minutes including presentations followed by Q and A oportunity. Please note - this is one hour earlier than previous Wellbeing Wednesdays.

*Please see Schedule below for time zones as Europe and the US change into daylight savings at different dates.

Who can attend?

Patients, carers and healthcare professionals.

The person booking must be 18+ and registered with EOS Network's, but teens are very welcome to attend if they're accompanied by an adult.

Not a registered EOS Network member? REGISTER HERE

The sessions are completely free for our members, just BOOK A PLACE for each week you wish to attend.

Schedule

Week 1

The role of allergy in EoE: what's the connection?

Dr Sharon Hall - Paediatric Allergist, Imperial College London, UK
Dr Efrem Efren - Adult Clinical Immunologist, University Hospital, Southampton, UK

3rd March GMT 7 - 8:30pm; CET 8 - 9:30pm; EST 2 - 3:30pm; PST 11am - 12:30pm

Week 2

Adult EoE prevalence, symptoms, diagnosis, current treatments and management

Dr Sarmed Sami - Gastroenterologist, University College London, UK
Dr Jamal Hayat - Gastroenterologist, St George's, London, UK

10th March GMT 7 - 8:30pm; CET 8 - 9:30pm; EST 2 - 3:30pm; PST 11am - 12:30pm

Week 3

Children and teens EoE prevalence, symptoms, diagnosis, current treatments and management

Dr Salvatore Oliva - Paediatric Gastroenterologist, Gastroenterology and Liver Unit Maternal and Child health department. Sapienza University Rome
Dr Diana Flynn - Paediatric Gastroenterologist, Royal Hospital for Children, Glasgow, UK

17th March GMT 7 - 8:30pm; CET 8 - 9:30pm; EDT 3 - 4:30pm; PDT 12 - 1:30pm

Week 4

EoE a chronic disease: long term management, strictures, dilation and food obstructions

Professor Stephen Attwood, Durham University, UK
Amanda Cordell - Founder, EOS Network, UK

24th March GMT 7 - 8:30pm; CET 8 - 9:30pm; EDT 3 - 4:30pm; PDT 12 - 1:30pm

Week 5

EoE current and future treatments around the globe

Professor Evan Dellon, Department of Medicine, Division of Gastroenterology and Hepatology, UNC School of Medicine, US

31st March BST 7 - 8:30pm; CEST 8 - 9:30pm; EDT 2 - 3:30pm; PDT 11am - 12:30pm

With thanks to the HM Government Coronavirus Community Support Fund, distributed by The National Lottery Community Fund, for supporting Wellbeing Wednesdays.

Booking for this event has now closed.

Latest

Dupilumab maintains long-term efficacy in EoE

The third part of a trial investigating dupilumab in EoE has found the drug maintains its clinical, symptomatic and histologic efficacy and safety profile up to Week 52 in adults and children over 12+.
Update on MESSINA EoE Trial

October 2022 - MESSINA trial of Fasenra in EoE patients demonstrated a significant improvement in histological disease remission but not an improvement in dysphagia symptoms.
EoE HCP Educational UK Roadshow

An educational EoE Roadshow is coming to cities across the UK, offering an excellent opportunity for HCPs to learn more about the fast-changing landscape of eosinophilic oesophagitis.
Revolo Phase 2 Trial for EoE Completes Enrolment

Enrolment has completed for a Phase 2 trial investigating an immune-resetting molecule in the treatment of EoE. The molecule can reset the immune system from a pro-inflammatory state to a regulated homeostatic state.

Think EoE! GP Awareness Campaign

We need our community to volunteer to distribute EoE information to their local doctor's surgeries. This will include a patient information poster for the waiting room and a GP information leaflet that will direct them to a dedicated GP online training module, guidelines and patient resources.
Team Rice

We are fundraising for our son Fergus and those like him who have been diagnosed with a rare Eosinophilic Gastrointestinal Disease. Our family relay team of 5 will be cycling 1363Km in 24 hours on two indoor bikes.
Think EoE! Healthcare Professionals Campaign

Help us to spread awareness among your fellow healthcare professionals by participating in our Think EoE campaign. Register for our pack of resources to help educate others to recognise the symptoms.
May Community Chat

EOS Community Chat Wednesday 25th May - an informal zoom event giving an opportunity to meet and chat with others living with Eosinophilic Gastrointestinal Diseases.
Angela's GNR 2021

My Grandaughter has had the worst three years of her life, she was unwell from the day she was born and this March she was diagnosed with Eosinophilic Colitis. Help us raise funds for a better awareness of this rare disease, improved access to treatments and care for all those affected. Please sponsor my half marathon in the Great North Run
Mark's - UK IRON Man Distance Triathlon

I am fundraising to help my youngest son George and others like him who have been diagnosed with Eosinophilic Colitis a rare gastrointestinal disease.
Wellbeing Wednesdays: EoE and Diets

Our patient and carer community Wellbeing Wednesday virtual meet-ups will continue in February, and will feature presentations and Q&A sessions from dietitans for both adult and paediatric patients with EoE.
EUREOS EGID Symposium 2020

Nov 2020 - We were proud to speak at the EUREOS Eosinophilic Gastrointestinal Diseases Symposium in October, with our Chair Amanda Cordell presenting on the Patient Perspective of living with EoE.
RAREfest20

Oct 2020 - RAREfest20 is an interactive event on the 28th November celebrating the stories, science and organisations improving the lives of people with rare diseases.
Student Voice Prize 2020

Oct 2020 - This year's Student Voice Prize information, questions. details on how to apply and the prizes.

EoE - Eosinophilic Oesophagitis

EoE Eosinophilic Oesophagitis (EoE) is a chronic condition where an individual has too many of a white blood cell called an eosinophil in the oesophagus, which causes inflammation and difficulties swallowing.
What are Eosinophilic Diseases?

When abnormal levels of eosinophils are found in your digestive system (oesophagus, stomach or intestine/bowel), tissues, blood or other organs without a known cause/diagnosis, further consideration should be given to eosinophilic - associated diseases.
EoE Symptoms and Causes

The symptoms and known causes of eosinophilic oesophagitis (EoE) in children and adults. Links to videos from gastroenterologists and a patient Action Plan for food blockages.
EoE Treatment

An overview of the different types of treatment for eosinophilic oesophagitis (EoE). Includes dietary, allergy, dilatation and drug therapies.
Types of Eosinophilic Diseases

EGID’S Eosinophilic Gastrointestinal Disorders: EoE Eosinophilic Oesophagitis Esophagitis: Oesophagus EoG Eosinophilic Gastritis: stomach EoN Eosinophilic Enteritis: small intestine EoC Eosinophilic Colitis: large intestine HES Hypereosinophilic Syndrome: blood and any organ Churg-Strauss Syndrome - Eosinophilic Granulomatosis with Polyangiitis: lungs, sinuses, heart, various organ systems
What is an eosinophil?

The eosinophil has many varied roles some of which are yet to be discovered. Current research shows that they can be both helpful and harmful. In a healthy individual typically 1 to 5% of white blood cells are eosinophils which play an important role in your immune system.
EoE Diagnosis

How eosinophilic oesophagitis (EoE) is diagnosed, current medical guidelines and more resources for patients and healthcare professionals.
EoE and Covid-19 UK FAQ's

Frequently Asked Questions on Covid-19 and EoE Eosinophilic Oesophagitis, answered by the British Society of Paediatric Gastroenterology, Hepatology and Nutrition BSPGHAN Working Group Click Here
Food Obstruction Patient Action Plan

EoE Food Obstruction Action Plan for Patients and Carers. A free printable resource for those diagnosed with Eosinophilic Oesophagitis.
EoG - EoN - EoC Eosinophilic Diseases Lower Gut

What Are Lower Gut Eosinophilic Gastrointestinal Diseases the lower EGID's: Eosinophilic Gastritis EoG - Eosinophilic Enteritis EoN - Eosinophilic Colitis EoC?

Food Obstruction Patient Action Plan

EoE Food Obstruction Action Plan for Patients and Carers. A free printable resource for those diagnosed with Eosinophilic Oesophagitis. Read more

EAW 22 - Save the Date!

Save the date in your diaries - Eosinophil Awareness Week (EAW) will take place 16th - 22nd May this year! It's an opportunity to promote awareness of EGIDs and show support for those living with eosinophilic diseases. Read more